با همکاری مشترک دانشگاه پیام نور و انجمن روانشناسی سلامت

نوع مقاله : علمی- پژوهشی

نویسندگان

1 دانشجوی دکتری، گروه روانشناسی سلامت، دانشگاه خوارزمی تهران.

2 استاد، گروه روانشناسی بالینی، دانشگاه خوارزمی تهران.

3 دانشیار، گروه روانشناسی بالینی، دانشگاه خوارزمی تهران.

چکیده

مقدمه: تجربه سرطان جنبه ­های اجتماعی - فرهنگی مهمی دارد که می‌تواند پیامدهای روانشناختی جدی برای بازماندگان سرطان داشته باشد. این جنبه ­های بیماری حتی می­تواند بر سلامت و بقای آنان تاثیر بگذارد. از این رو، پژوهش حاضر با هدف کاوش تجارب بافتاری که افراد بعد از ابتلا به سرطان با آنها مواجه می­ شوند صورت گرفت. روش: پژوهش کیفی حاضر از تحلیل پدیدارشناسی تفسیری استفاده کرده است. داده­ها از طریق مصاحبه نیم­ ساختاریافته با 17 فرد مبتلا به سرطان گردآوری شد. یافته‌ها: از تحلیل مصاحبه ­ها مفهوم اصلی "تجارب بافتارمند مبتنی بر سرطان" اکتشاف شد که شامل شش خوشه مفهومی است: غیرمنتظره بودن، نگرش فرهنگی، تبیین­های بیماری، استعاره­های بیماری، بازخوردهای اجتماعی، پیشگویی ­های وحشتناک. نتیجه‌گیری: به‌طورکلی، پس از تشخیص سرطان، افراد با طیفی از تجارب اجتماعی-فرهنگی مواجه می­ شوند که می­تواند بر انطباقشان با بیماری تاثیر بگذارد. بنابراین، ضروری است در مداخلات آموزشی (اجتماعی و فردی) و درمانی مرتبط با سرطان به این مولفه ­ها توجه شود.

کلیدواژه‌ها

عنوان مقاله [English]

Cancer-Based Contextual Experiences: A Phenomenological Study

نویسندگان [English]

  • Mojtaba Dehghan 1
  • Jafar Hasani 2
  • Alireza Moradi 2
  • SHahram Mohamadkhani 3

1 Ph.D Student in Health Psychology, Kharazmi University of Tehran.

2 Professor, Department of Clinical Psychology, Kharazmi University of Tehran.

3 Associate Professor, Department of` Clinical Psychology, Kharazmi University of Tehran.

چکیده [English]

Objective: The experience of cancer has important socio-cultural aspects that can have serious psychological consequences for cancer survivors. These aspects of the illness can even affect their health and survival. Therefore, the present study was conducted with the aim of exploring the contextual experiences that people face after cancer. Method: The present qualitative research used interpretive phenomenological analysis (IPA). Data collected through semi-structured interviews with 17 cancer patients. Findings: From the analysis of the interviews, the main concept of "cancer-based contextual experiences" was explored, which includes six conceptual clusters: Unexpected being, cultural attitudes, explanation of illness, cancer metaphors, social feedback, horrible predictions. Conclusion: After cancer diagnosis, overall, People are exposed to a range of socio-cultural experiences which can affect their adaptation to illness. Therefore, it is necessary to pay attention to these components in cancer-related educational (social and individual) and therapeutic interventions.
I

کلیدواژه‌ها [English]

  • Cancer
  • Contextual Experiences
  • Phenomenology
  • Qualitative research
بهمنی، ب؛ نقیائی، م؛ قنبری مطلق، ع؛ خراسانی، ب؛ دهخدا، آ و علی محمدی، ف. (1393). رضامندی زناشویی زنان مبتلا به سرطان سینه در طی دوره درمان‌های تکمیلی پزشکی: یک مطالعه مقایسه‌ای. روانشناسی سلامت، 3 (9)، 1-12.
پورمحسنی کلوری، ف؛ شجاعی مقدم، آ؛ جعفری، ع و مولایی، م. (1399). مقایسه نیمرخ شخصیتی، تحمل ابهام و مقابله مذهبی در افراد مبتلا به سرطان خون و افراد سالم. روانشناسی سلامت، 9 (1)، 45-60.
American Cancer Society. (2014). Cancer treatment and survivorship facts & figures 2014–2015. Retrieved from: http://www. Cancer .org/acs/groups/content/@research/ documents/document/acspc-042801.pdf.
Benner, P. (1994). Interpretive Phenomenology: Embodiment, Caring and Ethics in Health and Illness. Thousand Oaks: Sage publications.
Chapple, A., Ziebland, S., & McPherson, A. (2004). Stigma, shame, and blame experienced by patients with lung cancer: qualitative study. British Medical Journal,  328, 1470. https://doi.org/ 10.1136 /bmj.38111.639734.7C.
Charmaz, K. (2002). Keynote Address: The Self as Habit: The Reconstruction of Self in Chronic Illness. The Occupational Therapy Journal of Research, 22 (1), 31S-42S. https://doi.org /10.1177%2 F15394­492020220S105.
Coreil, J., Wilke, J., & Pintado, I. (2004). Cultural models of illness and recovery in breast cancer support groups. Qual Health Res, 14, 905–923. https://doi.org/ 10.1177/10497 32304266656.
Coyne, E., Heynsbergh, N., & Dieperink, K.B. (2020). Acknowledging cancer as a family disease: A systematic review of family care in the cancer setting. Eur J Oncol Nurs, 49, 101841. https://doi.org/10.1016/j.ejon.2020.101841.
Creswell, J.W., & Creswell, J.D. (2019). Qualitative, Quantitative, and Mixed Methods Approaches. Fifth Edition. London: SAGE Publications.
Daher, M. (2012). Cultural beliefs and values in cancer patients. Annals of Oncology, 23 (3), 66-69. doi:10.1093/annonc/mds091.
Falk, S.J., & Dizon, D.S. (2020). Sexual Health Issues in Cancer Survivors. Seminars in Oncology Nursing, 36 (1), 150981. https://doi.org /10.1016 /j.soncn.2019.150981.
Finley, J.P. (2018). Caregiver Café: providing education and support to family caregivers of patients with cancer. Clin J Oncol Nurs, 22(1), 91-96. doi: 10.1188/18.CJON.91-96.
Fischer, J., Stope, M.B., Gumbel, D., Hakenberg, O., Buechardt, M., & Drager, D.L. (2019). Influence of culture and religion on the treatment of cancer patients. Der Urologe, 8(10),1179-1184. doi: 10.1007 /s00 120-019-1003-5.
Gorman, L.M. (2018). The Psychosocial Impact of Cancer on the Individual, Family, and Society. In: Nancy Jo Bush and Linda Gorman. Psychosocial Nursing Care Along the Cancer Continuum. Third Edition. Oncology Nursing Society Publication.
Hamilton, J.B., Moore, C.E., Powe, B.D. Agarwal, M., & Martin, P. (2010). Perceptions of support among older African American cancer survivors Oncol Nurs Forum, 37 (4), 484-493. doi: 10.1188/10.ONF.484-493.
Hughes, C., Fasaye, G.A., LaSalle, V.H., Finch, C. (2003). Sociocultural influences on participation in genetic risk assessment and testing among African American women. Patient Educ Couns, 51, 107–114. https://doi.org/10.1016/s0738-3991 (02)00179-9.
Iwelunmor, J., Newsome, V., & Airhihenbuwa, C. (2014). Framing the impact of culture on health: a systematic review of the PEN-3 cultural model and its application in public health research and interventions. Ethn Health, 19(1), 20–46. https://doi.org/10.108­0/13 557858.2013.857768.
Jemal, A., Ward, E.M., Johnson, C.J., Cronin, K.A., Ma, J., Ryerson, B., Mariotto, A., Lake, A.J., Wilson, R., et al. (2017). Annual Report to the Nation on the Status of Cancer, 1975‐2014, featuring survival. J Natl Cancer Inst, 109 (9), djx030. https://doi.org/1­0.1093/jnci/djx030.
  Kendal, W.S. & Kendal, W.M. (2012). Comparative risk factors for accidental and suicidal death in cancer patients. Crisis, 33(6): 325–334. https://psycnet. apa.org/ doi/10.1027/0­227-5910/a000149.
Keusch, G.T., Wilentz, J., & Kleinman, A. (2006). Stigma and global health: developing a research agenda. Lancet, 367, 525–527. https://doi. org/10.1016/s0140-6736(06)68183-x.
Kim, J.G., Hong, H.C., Lee, H., Ferrans, C.E., & Kim, E. (2019). Cultural beliefs about breast cancer in Vietnamese women. BMC Women's Health, 19 (74), 1-8. https://doi.org/10.1186/s12905-019-0777-3.
Klaver, K.M., Duits, S.F.A., Engelhardt, E.G., Geusgens, C.A.V., Aarts, M.J.B., Ponds, R.W.H.M., van der Beek, A.J., & Schagen, S.B. (2020). Cancer-related cognitive problems at work: experiences of survivors and professionals. Journal of Cancer Survivorship, 14, 168–178. https://doi.org/10.1007/s11764-019-00830-5.
Kreuter, M.W., & Haughton, L.T. (2006). Integrating culture into health information for African American women. Am Behav Sci, 49, 794–811. https://doi.org/10. 1177 %2F0002764205283801.
LoConte, N.K., Else–Quest, N.M., Eickhoff, J., Hyde, J., & Schiller, J.H. (2008). Assessment of guilt and shame in patients with non-small-cell lung cancer compared with patients with breast and prostate cancer. Clin Lung Cancer, 9(3), 171–8. https://doi.org/10.3816/clc.2008.n.026.
Penson, R.T., Schapira, L., Daniels, K.J., Chabner, B.A., & Lynch, T.J. (2004). Cancer as metaphor. Oncologist, 9(6), 708-16. doi: 10.1634/theoncologist.9-6-708.
Pesantes, M.A., Somerville, C., Singh, S.B., Perez-Leon, S., Madede, T., Suggs, S., & Beran, D. (2019). Disruption, changes, and adaptation: Experiences with chronic conditions in Mozambique, Nepal and Peru. Global Public Health, 15(3), 372-383. https://doi.org/10.1­080/17441 692.2019.1668453.
Pitman, A., Suleman, S., Hyde, N., & Hodgkiss, A. (2018). Depression and anxiety in patients with cancer. British medical journal, 361, k1415. https://doi.org/10.1136/bmj.k1415.
Potts, A., & Semino, E. (2019). Cancer as a Metaphor. Metaphor and Symbol, 34 (2), 81-95, DOI: 10.1080/10926488.2019.1611723.
Purbadi, S., Santawi, V.P.A., Tjahjadi, H., Matondang, S., & Nuranna, L. (2020).  Case report: Unpredictable nature of tubal cancer. Annals of Medicine and Surgery, 51, 44-47. https://doi.org/10.1016/j.amsu.2020.01.002.
Semino, E., Demjén, Z., Hardie, A., Rayson, P., & Payne, S. (2018). Metaphor, cancer and the end of life: A corpus-based study. New York, NY: Routledge.
Siegel, R.L., Miller, K., & Jemal, A. (2020). Cancer Statistics, 2020. A Cancer Journal for Clinicians, 70 (1), 7-31.  https://doi.org/ 10.3322/ caac.21590.
Surbone, A. (2008). Cultural aspect of communication in cancer care. Supportive Care in Cancer, 16(3), 235-40. doi: 10.1007/s00520-007-0366-0.
Tu, H., Chu, H., Guan, S., Hao, F., Xu, N., Zhao, Z., & Liang, Y. (2021). The role of the M1/M2 microglia in the process from cancer pain to morphine tolerance. Tissue and Cell, 68, 101438. https://doi.org /10.1016 /j.tice.2020.101438.
Walker, J., Hansen, C.H., Martin, P., Sawhney, A., Thekkumpurath, P., Beale, C., Symeonides, S., Wall, L., Murray, G., & Sharpe, M. (2013). Prevalence of depression in adults with cancer: a systematic review. Ann Oncol, 24(4), 895–900. https://doi.org/10.1093/annonc/mds575.
Weiss, M., Ramakrishna, J., & Somma, D. (2006). Health-related stigma: rethinking concepts and interventions Psychol Health Med, 11 (3), 277-287. https://doi.org/10.1080/13548­500600595053.
Willing, C. (2013). Introducing Qualitative Research in Psychology. 3th edition. Londen: Open University Press.
Yin, R. K. (2009). Case study research: Design and methods (4th ed.). Thousand Oaks, CA: Sage.
Zhu, J., Fang, F., Sjölander, A., Fall, K., Adami, H.O., & Valdimarsdóttir, U. (2017). First-onset mental disorders after cancer diagnosis and cancer-specific mortality: a nationwide cohort study. Ann Oncol. 28(8), 1964–9. https://doi.org /10.1093 /annonc/mdx265.