In collaboration with Payame Noor University and Iranian Health Psychology Association

Document Type : Scientific Research

Authors

1 department of psychology, faculty of literature and humanity. university of Guilan, Rasht, Iran.

2 Assistant professor of health psychology in Guilan university

3 department of psychology, faculty of literature and humanity science , University of Guilan, Rasht, Iran.

Abstract

Objective: A diagnosis of cancer will influence the person with cancer and their family over a long period of time. Caregivers of cancer patients play important role over the trajectory of cancer care from diagnosis to the end of life. The aim of this study is explaining of regrets in first degree survivors of cancer patients with early death. Method: In the present study, qualitative research method has been used with the descriptive phenomenology approach. The information was collected and recorded through individual, in-depth and semi-structured interviews with eight individuals. Data were analyzed by colaizzi method. Findings: The themes were obtained under three main questions were categorized to four main themes, include "complete dissatisfaction with yourself", "feeling of negligence", "trying to fulfill the patient’s wishes and comfort", "not expressing enough emotions", "impact of the treatment staff". Conclusion: The results of present study demonstrate that there is shortcoming in supporting families of cancer patients and it is important to support bereaved people after grief in order to decrease self-blame and increasing comfort and relaxation. Effective interventions in health psychology is necessary to alleviate annoying effect of regret for families of cancer patients, during illness, after loss and experience of grief.

Keywords

حمید­نژاد، افسانه. (1397). پدیدارشناسی تجربی بیماران مبتلا به سرطان از عدم پذیرش بیماری (مطالعه موردی کودکان سرطانی مرکز تخصصی رادیوتراپی سرطان­شناسی امام رضا (ع). پایان‌نامه کارشناسی ارشد، دانشگاه اسلامی واحد شاهرود، دانشکده علوم انسانی.
صالحی، دل­آرام؛ زرّانی، فریبا؛ فتی، لادن؛ شعربافچی، محمدرضا. (1399). مقایسه معنای زندگی و نگرش به مرگ در مراقبین بیماران مبتلا به سرطان و افراد عادی. مجله روانشناسی سلامت، (9)35، 69-86.
عظیم­زاده طهرانی، نگار؛ بیاضی، محمدحسین؛ شاکری­نسب، محسن. (1399). رابطه روش‌های مقابله اسلامی و احساس انسجام روانی با سازگاری با بیماری و تحمل درد در بیماران مبتلا به سرطان پستان. مجله روانشناسی سلامت، (9)33، 145-160.
Akiyama, A., Numata, k., & Mikami, H. (2010). Importance of end-of-life support to minimize caregiver’s regret during bereavement of the elderly for better subsequent adaption to bereavement. Arch Gerontol Geriatr, 50, 178-8.
Allen, J.Y., Haley, W.E., Small, B.J., Schonwetter, R.S., & Memillan, S.C. (2013). Bereavment among hospice caregiver of patients one year following loss: predictor of grief, complicated grief and symptom of depression. J Palliat Med, 16, 745-751.
Carr, D., House, J.S., Wortman, C., Nesse., R., & Kessler, R.C. (2001). Psychological adjustment to sudden and anticipated spousal loss among older widowed person. J. Gerontol. B: Psychol. Sci.Soc.Sci.56, s237-S248.
Chimlung, J., Thanaslip, S., Akkayagorn, L., Upasen, R., PUDTONG, N., & Tantitrakul, W. (2017). Effective of an intervention based on basic Buddhist principle on the spiritual well-being of patients with terminal ill. European Journal of Oncology Nursing, 31, 46-51.
Chindaprasit, J., Wongtirawit, N., Limpawattana, P., Srinonprasert, V., Manjavong, M., Chotmongkol, V., ... & Sawanyawisuth, k. (2019). Heliyon, 5, e02067.
   Choi, N., & Jun, J., (2009). Life regrets and pride among low-incom older adult: Relationships with depressive symptom, current life stressos and coping resources. Aging & Mental Health, 13(2), 213-225.
Colaizzi, P. (1978). Psychological research as the phenomenologist views it existential phenomenclogical arlternative for psychology (Valvale R & King M eds), oxford.
Coyne, E., Heynsberg, N., Dieperink, K.B. (2020). Acknowledging cancer as a family disease: A systematic review of family care in the cancer setting. European Journal of Oncology Nursing, 49, Article 101841.
Department of Medical Service. (2014). Palliative Care Guidline. Availabe: http://www.dms.moph.go.th/dmsweb/cpgcorner.
Field, N., Bonanno, G.A., Williams, P, & Horowitz, M.J. (2000). Appraisal of blame in adjustment in conjugal bereavement. Congnitive therapy and Research, 24(5), 551-569.
Finley, J.P. (2018). Caregiver café: providing education and support to family caregivers of patients with cancer. Clinical Journal of Oncology Nursing, 22, 91-96.
Funk, L., Stajduhar, k., Toye, C., Aoun, S., Grande, G., & Todd, C. (2010). Home-based family caregiving at the end of life, part 2: A comprehensive review of published qualitative research (1998-2008). Palliative Medicine, 24(6), 594-607
Given, B.A., Given, C.W., & Sherwood, P. (2012). The challenge of quality cancer care for family caregivers. Semminar in Oncology Nursing, 28, 205-212.
Gomes, B., Pinheiro, M.J, Lopes, S., de Brito, M., Sarmento, V.P., Lopes Ferreira, p., & Barros, h. (2018).  Risk factors for hospital death in condition needing palliative care: nationwide population-based death certificate study. Palliat. MED.32(4), 891-901.
Guldin, M.B., Vedsted, P., Zachariae R., Olesen, F., & Jensen, A.B. (2012). Complicated grief and need for professional support in family caregivers of cancer patients in palliative care: Alongitual cohort study, Support Care Cancer,20,1679-1685.
Hauksdottir, A., Ualdimarsdottir, U., Furst, C.J, Onelov, E., & Steineck, G. (2010). Health care-related predictor of husbands’ preparedness for the death of a wife to cancer – a population –based follow up. Annals of oncology: official journal of the European Society for Medical Oncology/ESMO 21 (2): 354-361.
Hirai, K., Miyashita, M., Morita, T., Sanjo, M., & Uchitomi, Y. (2006). Good death in Japanease cancer care: A qualitative study. J Pain Symptom Manage, 31, 140-147.
Holland, J.M., Thompson, K.L., Rozalski, V., & Lichtenthal, W.G. (2013). Bereavement-related regret trajectories among windowed older adult. Journal of Gerontology: Series B: Psychological science and social sciences, Advance Access. doi: 10.1093/geronb/gbt050.
Ishida, M., Onideki, H., Matsubara, M., Tada, Y., Ito, H., Masaru Narabayashi, M Uchitomi, Y. (2012). Psychological distress of bereaved seeking medical counseling at a cancer center. Jpn J clin Oncol, 42(6), 506-512.
Ishida, M., Onishi, H., Matsubara, M., Tada, Y., Ito, H., Narabayashi, M., … & Uchitomi, Y. (2012). Psychological distress of the bereaved seeking medical counseling a cancer center. Jpn J Clin Oncol, 42, 506-512.
Jokisaari, M. (2004). Regret and subjective well-being: A life-course approach. Journal of adult Development, 11, 281-288.
Klingspon, K.L. (2014). Unfinished business in bereavement: A mixed method study. University of Nevada, Las Vegas, (UNLS).
Klingspon, K.L., Holland, J.M., Neimeyer, R.A., Lichtenthal, W.G. (2015). Unfinished business in bereavement. Death Stud, 39, 387-398.
Kohs, J., & Kim, J. (2016). Communication for end-of-life care planning among Korean patient with terminal cancer. A context-oriented model. Palliat Support Care, 14,69-76.
Mack, J., Wolf, J., Grier, H.E., Cleary, P., & Weeks, J. (2006). Communication about prognosis between parents and physician of children with cancer: parental preferences and the impact of prognostic information. J Clin Oncol, 24, 5265-70.
Mori, M., Yoshida, S., Shiozaki, M., Baba, M., Morita, T., Aoyama, m., … Miyashita, M. (2017). Talking about death with terminally-ill cancer patients: what contriute to the regret of bereaved family members? Journal of Pain and Symptom Management. doi: 10.1016/j. jpainsymman.2017.02.021.
 Nakazato., K., Shiozaki., M., Hirai, K. (2013). Feeling and conversation between family and patient being admitted palliative care unit [Japanise]. The Japan Hospital and Care Evaluation Study,75-81.
National Statistical Office, 2014. Statistical Yearbook Thiland 2015. Available at: http://service.nso .go .th/nso/nsopublish/pub/e-book /esyb 58 /index. html# 223/z .
Park, C.H., Shin, D.W., Choi, J.K., Kang, J., Back, Y.J., Mo, H.N., & Park, S. (2012). Determinals of the burden and positivity of family caregivers of terminally ill cancer patients in Korea. Psycho Oncology, 21 (3), 282-290.
Romito, F., Goldzweig, G., Cormio, C., Hagedoorn, M., & Andersen, B.L. (2013). Informal caregiving for cancer paitients: informal caregiving. Cancer, 119, 2160-2169.
Sanders, C. (1994). Pain and impending death. In: Wall, P.D., Melzack, R. (Eds). Textbook of Pain. Churchill-Livingstone, New York, pp. 861-868.
Siegel, R., Naishadham, D., & Ahmedin, J. (2012). Cancer stastistics. CA Cancer Jclin, 62, 10-29.
Stajduhar, k.I, Funk, L., Toye, C., Aoun, S., Grande, G., & Todd, C. (2010). Home-based family caregiving at the end of life, part 1: A comprehensive review of published qualitative research (1998-2008). Palliative Medicine, 24(6), 594-607.
Steinhauser, K.E, Voils, C.I, Boswoth, H., & Tulsky, J.A. (2014). What constitutes quality of family experience at the end of life? Perspective from family members of patients who died in the hospital. Plliative Support Care, 13, 945-952.
Torges, C.M., Stewart, A.J., & Nolen-Hoeksema, S. (2008). Regret resolution. Aging. And adapting to loss. Psychology and Aging. 23(1), 169-180.
Valdimarsdo’ttir, U., kreicberg, U., Hauksdottir, A., Hunt, H., Onelov, E., Jan-lnge-hener, & Steineck, G. (2007). Parent’s intellectual and emotional awareness of their child’s impending death to cancer: a population-based long-term follow-up study. Lancel Oncl, 8, 706-14.
Wiswrsrith, W., Deeying, S., & Rodpal, J. (2013). Palliative care and end of life care forchronically ill older adult. M &M Laster Print, Bangkok.
World Health Organization. (2015). Cancer Available at: http://www. who.int/mediacenter/factsheets/fs297/en/.
Yamaguchi, T., Maeda, I., Hatano, Y., Mori, M., Shima, Y., Tsuneto, S., & Miyashita, M. (2017). Effect of end-of-life discussion on the mental health of bereaved family member and quality of patient death and care. Journal of Pain and Symptom Management, 54 (1), 17-26.
Yamashita, R., Arao, H., Takao, A., Masutan, E., Morita, T., Shima, Y., Kizawa, Y., & et al. (2017). Unfinished business in family of terminally ill with cancer patients. Journal of Pain and Symptom Management, 54 (6), 861-869.
Ylitalo, N., Valdimarsdottir, U., Onelὄve, E., Dickman, P.W., & Steinneck, G. (2008). Guilt after the loss of a hasband to cancer, is there a relation with the health care provided? Acta Oncd, 47, 870-878.