In collaboration with Payame Noor University and Iranian Health Psychology Association

Document Type : Scientific Research

Authors

1 ّFamily Research Institute, Shahid Beheshti Univercity, Tehran, Iran

2 Clinical and Health Psychology Department, Faculty of Education and Psychology, Shahid Beheshti University, Tehran, Iran.

Abstract

Objective: This study aimed to investigate the effectiveness of existential based spiritual intervention on quality of life and life meaning in patients with multiple sclerosis (MS). Method: Qualitative single case method with multiple baseline was applied. 5 patients were selected through purposive convenience sampling and were interviewed. Intervention was developed in 12 topics and applied weekly in two one-hour sessions. The process and mechanisms of changes were evaluated using the quality of life and life meaning scales. After obtaining of baseline in pretest stage, the participants were evaluated during six stages treatment process and two stages follow-up. The data were analyzed via visuals inspection, reliable change index (RCI) and improvement percentage strategies. Findings: The percentage of improvement was calculated in two scales and at three stages for five participants. The average improvement rate in the intervention stage was 114.32% for the Meaning-in-Life and 79.4% for Quality of Life, and in the follow-up stage it was obtained 185.5% for the Meaning-in-Life and 123.28% for Quality of Life. Intervention has positive and stable effect on Quality and Meaning of Life, but the subscales changed in different manner. Conclusion: Existential based spiritual intervention, which had affections on different level in meaning life, enhanced the patients’ quality of life in physical and psychological level. So this psychological intervention will be useful for MS patients.

Keywords

اورکی، م. سامی، پ. (1395). بررسی اثربخشی مداخله شناختی رفتاری مبتنی بر ذهن آگاهی یکپارچه بر میزان بهزیستی روان‌شناختی و کیفیت زندگی در بیماران مبتلا به مولتیپل اسکلروزیس. فصلنامه علمی-پژوهشی روانشناسی سلامت.4 (20): 19-5.
برهانی حقیقی، ا. و قائم، ه. (1384). «کیفیت زندگی در بیماران مالتیپل اسکلروزیس (MS): ترجمه و تطبیق فرهنگی پرسشنامه QoL-54 MS». فصلنامه علوم مغز و اعصاب ایران. 4 (10-11): 40-56.
ثمین، ط.، اخلاقی کوهپایی، ح. (1397). پیش‌بینی امید به زندگی بر مبنای کیفیت زندگی، استرس ادراک‌شده و خستگی در بیماران مبتلا به مولتیپل اسکلروزیس (MS). فصلنامه علمی-پژوهشی روانشناسی سلامت. 8، 1 (29): 101-119.
 صادقی، ز.؛ صفاری نیا، م.؛ سهرابی، ف. و علیپور، ا. (1396). «اثربخشی معنا درمانی بر کاهش افسردگی زنهای آسیب‌دیده از عهدشکنی همسران». فصلنامه روانشناسی کاربردی. 11، 3 (43): 315- 332. ضابطی، ع.؛ تقی‌لو، ص. و تاجری، ب. (1396). «نقش میانجی‌گر عزت‌نفس در رابطه بین چشم‌انداز زمان و کیفیت زندگی». فصلنامه روانشناسی کاربردی، 11، 1 (41): 85-101.
عبدخدایی، ز. (1396). «طراحی و تدوین مداخله مبتنی بر رویکرد تحلیل وجودی و معنویت؛ بررسی اثربخشی روانشناختی و عصب‌شناختی بر مبتلایان به مولتیپل اسلکروزیس». رساله دکتری روانشناسی بالینی، دانشگاه شهید بهشتی، دانشکده علوم تربیتی و روانشناسی.
عبدخدایی، ز.؛ شهیدی، ش.؛ مظاهری، م. ع.؛ پناغی، ل؛ و نجاتی و. (1397). «الگوی معنوی/مذهبی در بیماران مبتلا به مولتیپل اسکلروزیس (MS): مطالعه کیفی». مجله روانشناسی. 23 (3): 187-307.
قرازیبایی، ف.؛ علی‌اکبری دهکردی، م.؛ علیپور، ا؛ و محتشمی، ط. (1391). «اثربخشی معنا درمانی به شیوه گروهی بر استرس ادراک‌شده و امید به زندگی در بیماران مبتلا به ام‌اس». فصلنامه پژوهش در سلامت روان‌شناختی. 6 (4): 12- 20.
مرحمتی، ز؛ و یوسفی، ف. (1395). «رابطه ابعاد سبک زندگی اسلامی با بهزیستی روانشناختی در دانشجویان». فصلنامه روانشناسی کاربردی. 10، 3 (39): 329-346.
مسعودی، ر.؛ محمدی، ع.؛ نبوی، س. م؛ و احمدی، ف. (1387). «تأثیر برنامه خود مراقبتی مبتنی بر الگوی اورم بر ابعاد جسمی کیفیت زندگی بیماران مبتلا به مولتیپل اسکلروزیس». مجله علوم پزشکی شهرکرد.10 (2): 21-29.
می، ر. (1389). انسان در جستجوی خویشتن. ترجمه مهدی ثریا. تهران، نشر دانژه.
می، ر. (1394).عشق و اراده. ترجمه سپیده حبیب. تهران، نشر دانژه.
ون دورزن، ا. (1394). مشاوره و روان‌درمانی وجودی در عمل. ترجمه احمدرضا کیانی و یاسمن جمشیدیان. تهران، انتشارات ارجمند.
یالوم، ا. (1390). روان‌درمانی گزیستانسیالیسم. ترجمه سپیده حبیب. تهران، نشر نی.
Albuquerque, C., Geraldo, A., Martins, R. & Ribeiro, O. (2015). Quality of life of people with multiple sclerosis: Clinical and psychosocial determinants. Procedia - Social and Behavioral Sciences, 171, 359 – 365.
Backus, D. (2016). Increasing Physical Activity and Participation in People with Multiple Sclerosis: A Review. Archives of Physical Medicine and Rehabilitation, 97 (9), 210-217.
Boeschoten, R.E., Dekker, J., Uitdehaag, B.M.J., Polman, Ch.H., Collette, E.H., Cuijpers, P., Beekman. A.TF. & van Oppen, P. (2012). Internet-based self-help treatment for depression in multiple sclerosis: study protocol of a randomized controlled trial. BMC Psychiatry, 12 (137), 1-8.
Brissart, H., Daniel, F., Morele, E., Leroy, M., Debouverie, M. & Defer, G.L. (2011). Cognitive rehabilitation in multiple sclerosis: a review of the literature. Review in the neuroscience, 167 (4), 280-290.
Brown, CL., Colbeck, M., Fogarty, D. & Funk, S. (2016). Learning to live with multiple sclerosis cognitive impairment and how it influences readiness for group cognitive intervention. Disability and Health Journal, 9(4), 634-645.
Bussing, A., Ostermann, T. & Matthiessen, PF. (2005). The role of religion and spirituality in medical patients in Germany. Journal of Religion and Health, 44 (3), 321-340.
Costa, D. C., Marques Sa´, M. J. & Calheiros, J. M. (2013). Social Characteristics and Quality of Life of Portuguese Multiple Sclerosis Patients. Neurology Therapy, 2, 43–56.
Davison, S.N., Gian, S. & Jhangri, G.S. (2010). Existential and Religious Dimensions of Spirituality and Their Relationship with Health-Related Quality of Life in Chronic Kidney Disease. Clinical Journal of the American Society of Nephrology, l5, 1969 –1976.
Davison, S.N. & Jhangri, G.S. (2013). The Relationship between Spirituality, Psychosocial Adjustment to Illness, and Health-Related Quality of Life in Patients with Advanced Chronic Kidney Disease. Journal of Pain and Symptom Management, 45 (1), 170-179.
Farran, N., Ammara, D. & Darwish, H. (2016). Quality of life and coping strategies in Lebanese Multiple Sclerosis patients: A pilot study. Multiple Sclerosis and Related Disorders, 6, 21–27.
Giordano, A., Cimino, V., Campanella, A., Morone, G., Fusco, A., Farinotti, M., Palmisan, L., Confalonieri, P., Lugaresi, A., Grasso, MG., Ponzio, M., Veronese, S., Patti, F. & Solari, A. (2016). Low quality of life and psychological wellbeing contrast with moderate perceived burden in carers of people with severe multiple sclerosis. Journal of the Neurological Sciences, 366, 139-145.
Harrison, A.M., McCracken, L.M., Bogosian, A. & Moss-Morris, R. (2015). Towards a better understanding of MS pain: A systematic review of potentially modifiable psychosocial factors. Journal of Psychosomatic Research, 78, 12–24.
Heesen, C., Schulz, K.H., Fiehler, J., Von der Mark, U., Otte, C., Jung, R., Poettgen, J., Krieger, T. & Gold, S.M. (2010). Correlates of cognitive dysfunction in multiple sclerosis. Brain, Behavior, and Immunity, 24, 1148–1155.
Hosseini, S. M. S., Asgari, A., Rassafiani, M., Yazdani, F. & Mazdeh, M. (2016). Leisure time activities of Iranian patients with multiple sclerosis: a qualitative study. Health Promotion Perspectives, 6(1), 47-53.
Hughes, N., Locock, L. & Ziebland, S. (2013). Personal identity and the role of ‘carer’ among relatives and friends of people with multiple sclerosis. Social Science & Medicine. 96, 78-85.
Jensen, M.P., Moore, M.R., Bockow, T.B., Ehde, D.M. & Engel, J.M. (2011). Psychosocial factors and adjustment to chronic pain in persons with physical disabilities: a systematic review. Arch Phys Med Rehabil, 92, 146-60.
Küçük, F., Kara, B., Poyraz, E. C. & İdiman, E. (2016). Improvements in cognition, quality of life, and physical performance with clinical Pilates in multiple sclerosis: a randomized controlled trial. Journal of Physical Therapy Science, 28 (3), 761–768.
Makros, J. & Mccabe, M. (2003). The Relationship between Religion, Spirituality, Psychological Adjustment, and Quality of Life among People with Multiple Sclerosis. Journal of Religion and Health, 42(2), 143- 159.
Morgan, J & Farsides T. (2009). Psychometric evaluation of the Measuring Meaning in Life. Journal of Happiness Studies, 10 (2), 351- 366.
Olsson, M., Lexell, J. & Söderberg, S. (2008). The Meaning of Women's Experiences of Living With Multiple Sclerosis. Health Care for Women International, 29 (4), 416-430.
Pakniya, N., Bahmani, B., Dadkhah, A., Azimian, B., Naghiyaee, M. & Masudi Sani, R. (2015). Effectiveness of Cognitive Existential Approach on Decreasing Demoralization in Women with Multiple Sclerosis. Iranian Rehabilitation Journal, 13 (4), 28-33.
Papu´c, E. & Stelmasiak, Z. (2012). Factors predicting quality of life in a group of Polish subjects with multiple sclerosis: Accounting for functional state, socio-demographic and clinical factors. Clinical Neurology and Neurosurgery, 114, 341– 346.
Pargament, K.I., Oemig Dworsky, C.K., Wong, S. & Exline, J.J. (2016). Suppressing Spiritual Struggles: The Role of Experiential Avoidance in Mental Health. Journal of Contextual Behavioral Science, 5 (4), 258-265.
Plante, T. & Sherman, A.C. (2001). Faith and Health: Psychological Perspectives. New York and London: The Guilford Press.
Pompili, M., Forte, A., Palermo, M., Stefani, H., Lamis, D.A., Serafini, G., Amore, M. & Girardi, P. (2012). Suicide risk in multiple sclerosis: A systematic review of current literature. Journal of Psychosomatic Research, 73, 411–417.
Seibaek, L., Hounsgaard,L. & Hvidt, N.C. (2013). Secular, Spiritual, and Religious Existential Concerns of Women with Ovarian Cancer during Final Diagnostics and Start of Treatment. Evidence-Based Complementary and Alternative Medicine. 2013, 1-11.
Seifi, K. & Ebrahimi Moghaddam, H. (2018). The Effectiveness of Self-care Program on the Life Quality of Patients with Multiple Sclerosis in 2015. Journal of the National Medical Association, 110, 65-72.
Sousa, D., Pestana, A. & Tavares, A. J. (2019). Self-Awareness, Verbalization and New Meanings as the Heart and Soul of Significant Events in Existential Psychotherapy. Journal of Contemporary Psychotherapy,  49 (3), 161-167.
Van der Hiele, K., Spliethoff-Kamminga, N.G., Ruimschotel, R.P., Middelkoop, H.A. & Visser, L.H. (2012). Daily hassles reported by Dutch multiple sclerosis patients. Journal of the Neurological Sciences, 320, 85–90.
Voltzenlogel, V., Ernst, A., de Sèze, J., Brassat, D., Manning, L. & Berna, F. (2016). Giving meaning to illness: An investigation of self-defining memories in patients with relapsing-remitting multiple sclerosis patients. Consciousness and Cognition, 45, 200-209.
Wilski, M., Tasiemski, T. & Dabrowski, A. (2016). Body Esteem among Women with Multiple Sclerosis and its Relationship with Demographic, Clinical and Socio Psychological Factors. Imternational journal of behavioral medicine, 23 (3), 340-347.
Wolery, M., Dunlap, G. & Ledford, J.R. (2011). Single-Case Experimental Methods Suggestions for Reporting. Journal of Early Intervention, 33 (2), 103-109.